Saturday, May 28, 2011

Day 5 Update

Yesterday was another trying day for our little man.   Cain continued to battle with pain and it had gotten to a point that the tinest movement would get him uncontrollably agitated.   He would begin to cry when a nurse even entered the room.

As for progress, Cain had a post-op ECHO which will more than likely have to be repeated due to his consistent movement and fits of rage during the procedure.   He is so over anyone touching him.  I feel that he is very tolerant considering what all he's been through but I think he has a threshold that has been met.

Afterwards, he had his pacer wires removed followed by one of his chest tube (mediastinal).  This should provide a little more comfort to him; however, the process of getting them out was quite the battle.

He continues to have difficulty keeping meds and fluids down and experienced three bouts of vomiting during the day.  We tried to give him a banana to test out solid foods.  He barely ate one bite of the banana and decided it wasn’t for him.   He was also given another suppository since he has not had a bowel movement since the day before surgery.   Poor guy!  Overall we are making progress and Cain is in stable condition but the stay and Cain’s recovery is taking a toll on everyone.   We continue to be positive, but it is hard to watch him in so much pain.   We hope tomorrow will lead to a brighter day, and if we are lucky we maybe we will see our first smile out of him since the surgery. 


Katie said...

You're looking so good! Inspires me to maybe fix my hair one of these days!?! So sorry that Cain is having trouble keeping anything down. Knock on wood, we've only had 1 vomit episode. Hoping they also get the "right" combination/time frame of meds for him. Maddie's seems to be working for her and we've been lucky she can communicate this to us. I totally agree that it's so difficult watching them in pain, not being able to do anything about it and forcing them to do very painful, unpleasant things. It's cruel really. Praying for your little man...hang in there. Heart hugs to you.

For Our Brave Heart, Sam said...

Poor baby...I know it is killing you all to watch him in pain. We are praying for you guys!

cici said...

Awww poor little fella. I hope tomorrow is a much brighter day and he will be home with little sister very soon.