It’s hard to believe that one week from today Cain will have his ‘pre-Fontan’ heart catheterization. We knew this time would eventually come but I can’t believe we are so close to Cain’s next surgery.
Cain needs this heart catheterization to check his heart pressure's, the valves, chambers, etc. They will be able to get an overall look at his heart to make sure he is ready for his Fontan surgery. These pressure readings and pictures will be used to present Cain’s case at the next heart conference. The team of cardiologists, surgeons, and residents (about 20-30 doctors in total) have weekly conferences where they discuss the patients and in Cain’s case will come up with a plan of what will be done during Cain’s next surgery.
I’ve been doing all I can to stay very busy and try not to think of Cain’s cath or surgery. But I’ll be honest, it’s all I can think about! It breaks my heart that he has to go through another heart surgery. Even though we knew this time was coming there is no way you can prepare yourself for something like this. At the same time I know Cain’s little body is starting to show signs that it’s time for his Fontan surgery. Cain rarely slows down but he is really starting to have shortness of breath as he runs around and will come lay his sweet little head on my shoulder often to rest.
So next week (March 3rd) whether we are ready or not we will be taking Cain for his next heart catheterization. We will have to be at the hospital early that morning and will hopefully only have to stay one night. My parents are driving to Nashville next Wednesday and will be here to help us with Callie. She hasn’t been great at taking bottles. She has only taken 3 bottles since birth and refuses to drink formula. I’ll be working hard this week to get milk frozen and praying she will drink it from a bottle for my parents while they are here.