Wednesday, December 16, 2009

Cardiology Appointment

Today was a very big day for us! It was the first time in several months that Cain had a follow-up appointment with cardiology. And it was also the first appointment he had with his new cardiologist. You may or may not remember his previous cardiologist, Dr. Liske, moved to Knoxville. We loved Dr. Liske and hated to not see him today. I was nervous about the change but I think we will like his new cardiologist just as well.

The appointment started out with an Echo. I was curious how well Cain would do laying still during the Echo now that he is on the move all the time. He surprised me and did very well. He was a little wiggly at first but I was able to distract him with toys. He finally layed very still (pretty impressive for a 10 month old) and the Echo tech was able to get great pictures for the Dr.

Hanging out during his Echo

Clapping when the Echo being finished. When I say "Yay!" Cain will clap. I think I had said.."Yay! The Echo is finished" and he clapped. Pretty funny guy.

"Okay...I'm all me up Daddy"

After the Echo Cain had his vitals taken. His blood pressures on all extremities looked great. His sats were 88 which is great. He is now 27 inches long and weighed 19lbs 7 ounces today.

Being distracted by bubbles while having his BP taken

And trucks to distract him.

Daddy and Cain playing while waiting to see the cardiologist

After the Echo and vitals were done, we met with Cain's cardiologist. The great news is that everything looked good!! The only concern the cardiologist had was that Cain's left pulmonary artery is still a little small/narrow. This will be something that will more than likely have to be addressed during Cain's next surgery or after that surgery. The cardiologist also said that it would probably be something that would require widening over time as Cain grows.

Speaking of next surgery, we learned today that Cain's next surgery (if everything stays the same) could take place around the time Cain is 2 years old to 2 1/2 years of age. So possibly spring/summer of 2011. We also learned that Cain would have a fenestration (hole) put in during Cain's Fontan surgery. This is a normal occurrence during the Fontan surgery but the not so good news is that it will require another heart cath approximately 6 months to a year after the Fontan surgery to close the fenestration (hole).

Many people have asked me..."So, after Cain's next that it? Will that be his last surgery?" I wish that I could answer "yes" to this question but this will be a question I will never be able to answer. We can only hope and pray that the Fontan will be the last major open heart surgery he will need but after our meeting with the cardiologist today I think I have learned that Cain will more than likely have a few heart cath's in his future.

Overall, the appointment went really well and we were pleased with the good report!! I could tell I had been getting nervous about this appointment. I had been very anxious during the last week and I know this appointment was the reason why. I know Cain looks great on the outside but it's always SO GREAT to know that he looks GREAT on the inside too! Hopefully we will have the same great report again in 6 months.


ashleycottrell said...

Merry Christmas!!! What great news!!!! That is the best present you could have asked for this year.

Katie said...

Yay on great news! He's sure a cutie pie :) So, I assume the Fontan Cain is having is the lateral tunnel? Maddie's will be the extracardiac type so I think this is why we wait for a bigger girl before it, the conduit needs to be as big as possible. Anyway, now you can rest easy that he's doing so well, he sure looks great!

Susan said...

Great to hear the good news! Will be praying for Cain.

Lauren said...

Yay! Glad to hear things went well! =D

Cain is getting SO big, he is one handsome little man!

I'm 22 and still get ppl asking if the surgery I had when I was alittle over 2yrs. old will be my last open heart surgery... honestly I don't know either, but my cardiologist says he isn't sure, but if he had to guess, I will probably have one more when I'm older.

I know kids who have the Fontan (my classic and the ones they do now) may need a pacemaker, Fontan revision, or Fontan takedown later in life, but every case is different and every person handles the Fontan differently. I'm very lucky the Fontan has agreed very well with my body. I pray it agrees very well with Cain too! =D

Praying for sweet Lil Cain! I hope you have a Blessed Christmas! Sending LOTS of **Heart Hugs**!

With LOTS of Hope, Love, and Faith,
Lauren (22yr. old w/Tricuspid Atresia aka HRHS)


Shauna said...

That is the best news, now you can officially have a very Merry Christmas!! Can't wait to see you when you come in!

zander said...

What great news and a relief for all of you! Cain is amazing. We are always thinking of you guys and I get anxious to hear good reports like these that you post. Love his clapping pic after the echo... too cute!

3 "A's" and a "B" said...

wonderful news. Email me your holiday plans. we need to try to get together when we are at home.