Wednesday, September 30, 2009
My baby turned 8 months yesterday. I still can't believe he is already 8 months old. This year has flown by faster than any year of my life.
What is Cain doing at 8 months?
-At Cain’s last weight check he weighed 18lbs 10oz.
-The biggest change since last month is Cain is now sitting independently without needing to use his hands to prop himself up.
-He can’t get into a sitting position by himself yet but if he is sitting and starts to fall backwards he can recover on his own and get himself back into a sitting position.
-He can also grab toys around him while he is in a sitting position.
-Taking 6oz. (and sometimes 8oz.) of formula at 8am, 12pm, 4pm, and 8pm
-Eating Stage 1 (and some Stage 2) baby foods.
-Still sleeping from 8pm to 7am and taking 3 naps each day. I’m lucky if he will sleep an hour each nap. They are usually around 45 minutes.
-He still hasn’t mastered rolling from his back to his stomach but he is so close.
-He is making a lot of new sounds everyday.
-He is really starting to develop a sense of humor and will laugh while we are playing, laugh at Sadie, and with his friends. I just love to hear him laugh.
-Cain can also say he's gotten his first black eye. Last week during Cain's therapy, Cain was laying on his back playing with a toy above his face. He dropped it on his eye and the result was his first black eye. If you look very close at his 8 month picture you will see the tiny bruise under his eye.
I now wish that I had taken a whole body shot of Cain each month. It's hard to tell how much he's really grown just by looking at his face. He's starting to look the same in each months pictures yet he's changed so much!
Thursday, September 24, 2009
Tuesday, September 22, 2009
Many of you have walked this journey with us from the very beginning. Thank you all so much for being there for us and for supporting our family during our hardest moments.
There is a poem I’ve seen many times on websites and blogs since learning of Cain’s heart defects. I thought today would be a perfect day to share it with others since a year ago today was the day I became a ‘Heart Mother’.
The Day I became a 'Heart Mother' by Stephanie Husted
One day my world came crashing down,I'll never be the same...They told me that my child was sick...I thought, am I to blame? I don't think I can handle this...I'm really not that strong...It seemed my heart was breaking..As, I'd loved him for so long. I will not give up on this child..despite your best "advice"...I will give my child a chance...No matter what the price...And I will learn all that I need..to help my child to thrive...I'll even use that feeding tube..My child will survive! Will he require therapy? What if he can't gain weight? Alright God I can do this...I will not curse our fate. The feeding pump beeps,( at 3:00 a.m.)It serves as my reminder..How many parents would welcome that sound? Tomorrow Lord, I will be kinder. Another angel earns their wings..and I run to my sleeping child's bed...I watch him then, for quite awhile...(Bend down and kiss his head)Then I cry for the parent's whose lives have been broken,And I look to God wondering why?Oh Lord, I just can't know your ways..No matter how I try.And yet, I trust You hold his life,(and guide us through each day)My mind says savor each moment he's here...But my heart whispers,"Please let him stay".From... pacing the surgical waiting room...to sitting by his hospital bed...From... wishing for a good nights sleep...to learning every med...From... wondering will he be alright?to watching him reach out his hands..with every smile, my heart just melts..(despite life's harsh demands)For all who see that faded line...I look to them and smile...You see my child is loved so much..I would face any trial...That same scar I trace with my finger..(It's the door to his beautiful heart)I never guessed how much I'd love him...(Just as YOU loved him right from the start)A heart mom is always a heart mom..(Now wise beyond her years)And for those who have angels in heaven..Our hearts share in all of your tears..Everyday I will strive to remember..You chose me for him(and no other)And I will embrace that beautiful day..When I became a "heart mother".
Cain playing with the card he gave me for my birthday
And of course...eating it too!!
Thursday, September 17, 2009
Wednesday, September 16, 2009
Cain had to go in today and wear an EEG cap again for the study. He's already done this once and I think he will do this again around the time he turns a year. He wears this cap for 15 minutes while they monitor his brain response to sounds. I was worried what he would think of the cap this time but he really didn't seem to care at all. He was a very good participant.
Another part of the testing was to watch Cain pick up different objects to watch his body movements and hand coordination. He did really well during the testing and enjoyed playing with all the objects they gave him.
Once we finished up with the research study we headed downstairs for an ultrasound.
After the ultrasound we headed back upstairs and found out the news we've been waiting to hear! We were told that the blood clot Cain once had has resolved meaning it's NO LONGER THERE!!!! I can't tell you how happy we were to hear this. Cain will no longer need the shots we've been giving him each day (actually twice a day). Honestly, I hated giving Cain shots but I had gotten used to it. What I'm really happy about is the fact that the clot is gone and that is one less thing we will have to worry about. I hated knowing Cain had a blood clot.
I think Cain was pretty thrilled to know he would no longer need daily shots!
"Hey dad! Did you hear what the Dr. said...no more shots!!"
Monday, September 14, 2009
Sunday, September 13, 2009
Thursday, September 10, 2009
I checked his blog tonight as I do every day and was beyond thrilled to learn that Paul received his new heart!!!! His wife wrote on their blog that the transplant went very well, much more smoothly than expected. What wonderful news this is for the Cardall family!
Just less than a year ago I knew very little about organ donation. Boy have I learned a lot about this subject in the last year (and still have a lot more to learn)! When my license was up for renewal I agreed to be an organ donor. I even remember the week we found out about Cain’s heart defects Brad immediately signed up to be an organ donor. If you are unsure whether or not you are an organ donor and would like to be; you can learn more about becoming a donor at http://www.donatelife.net/.
Paul Cardell has lived 36 years with a single ventricle heart and tonight he has a 4 chamber perfect heart beating inside of him. What a miracle for Paul and his family. Of course with this miracle comes a loss for the donor family. My prayers go out to both Paul’s family and the donor family.
The following are a few statistics I learned this evening.
- More than 100,000 men, women and children currently need life-saving organ transplants.
- Every 11 minutes another name is added to the national organ transplant waiting list.
- An average of 18 people die each day from the lack of available organs for transplant.
I know organ donation is not what most people want to think about. But for us as ‘heart parents’ it’s something that is always in the back (or front) of our minds. Cain will live his life with a single ventricle heart. I pray every day that Cain’s heart will sustain him to live a very long, healthy life and that his heart will never fail him. At the same time I’m happy to know that heart transplants are an option for people who need them.
Again, if you are interested in becoming an organ donor make sure you go to http://www.donatelife.net/.
Wednesday, September 9, 2009
Monday, September 7, 2009
MiMi and Poppa had a gift for Cain and decided he needed to start playing with it right away. I think Cain really enjoyed staying up way past his bedtime and playing with new toy.
On Saturday Brad and my Dad played golf at the Hermitage Golf Course.
While me, Cain, and my mom had lunch and shopped at Babies R Us.
That night we had to get Cain ready for his very first LSU football game!!!!
Cain's "Uncle Jade" sent him this great outfit. It's a little big right now but we couldn't wait to see it on him.
Daddy and his little Tiger fan.
Unfortunately since LSU was playing Washington the game didn't start until 9:30. This poor little tiger fan had to go to bed before the game started. Since he wasn't going to be able to watch the game with us I thought it was only appropriate to put him to bed in his LSU pajama's. He has a book titled "Hey! Fighting Tigers" that teaches him the Fight Song. Of course this is what I had to read him before putting him to bed.
Sunday we had a very relaxing day! Especially my dad and Cain who were caught taking their nap together!
But then Monday morning finally arrived and my parents had to go home. We hated to see them go and I know they hated to leave.
When my parents left we decided we would run some errands, have some Outback, and enjoy the beautiful weather we were having. It was perfect Labor Day weather!!
Overall I think Cain had a great Labor Day weekend. I hope each of you had a great weekend too!