Saturday, August 29, 2009

7 Months

What is Cain doing at 7 months?
-At Cain’s last weight check he weighed 16lbs. 8oz.
-Still taking 6oz. of breastmilk and/or formula at 8am, 12pm, 4pm, and 8pm
-Started eating Stage 1 baby foods. He has now tried carrots, sweet potatoes, peas, bananas, applesauce and peaches. He seems to like everything we have given him expect the peas.
-He sleeps about 11-12 hours straight at night!! And still only takes short naps. He will go down for a nap around 9am and 1pm and will sleep about an hour each time. Most evenings he will take another quick nap around 5 or 6.
-Rolling from his stomach to his back now!!
-He is almost able to roll from his back to his stomach. If only he could figure out what to do with the arm that gets stuck underneath him. We will keep practicing.
-He can sit in the tripod position for a few seconds now.
-Making lots of noises. Always louder & louder!
-Laughing a lot. He is ticklish on his back and side and will laugh and laugh when I tickle him.
-Laughs and squeals when we play Peek-a-boo
-Really grabbing for anything and everything now. It’s so cute to watch him want something and go after it. Of course like any other baby he loves our phone and the remote.
-Cain seems to be a very laid back baby and I love this. He loves getting attention and always seems laid back no matter where we are…Dr. appointments, dinner, the boat, etc.
-Taking Lasix (diuretic) once a day, Enalapril (Blood Pressure med) twice a day, and Lovenox injections (blood thinner) twice a day

Friday, August 28, 2009

Update on Colby's surgery

I just wanted to give everyone an update on our friend Colby. His surgery went as planned today with no surprises. They were even able to go ahead and close his chest today which is wonderful! It was a very long day for Colby's parents. Colby was taken back for surgery around 8:00 this morning and Becca and Jason didn't get to see him again until 6:30. If you don't mind, please continue to pray that Colby has a speedy recovery with minimal "hiccups".

Thursday, August 27, 2009

Our buddy Colby

Our "heart buddy" Colby will have his Glenn operation tomorrow morning at 8:30. Please keep Colby, Jason, Becca and the Dr's in your prayers. This surgery is the 2nd surgery in the 3 stage repair process. It's the same surgery Cain had performed in June. I will keep you posted as I hear more about Colby. Or you can check on him at their blog which is http://www.hitchcockreport.com/. I'm sure they will appreciate the extra prayers for their "little monkey".

Wednesday, August 26, 2009

Hearing Evaluation

Today Cain had a hearing screen performed. After going to the wrong building, having to take a shuttle to the correct building, and having to wait over an hour to be seen Cain finally had his test performed. The final result was…no result! They did not seem concerned about his hearing (and neither am I) but they told me they couldn’t get an accurate reading so they want us to come back next month.

I asked the Dr’s why Cain needed a hearing test and I was told it was because he had a low Apgar score at birth and because of his heart defects. I had no idea what an Apgar score was so I looked it up online. I learned that the Apgar score is the very first test given to your newborn. The test is designed to quickly evaluate a newborn's physical condition after delivery and to determine any immediate need for extra medical or emergency care. There are five factors used to evaluate the baby’s conditions:

1. activity and muscle tone
2. pulse (heart rate)
3. grimace response (medically known as "reflex irritability")
4. appearance (skin coloration)
5. respiration (breathing rate and effort)

Considering Cain wasn’t breathing at birth and he was blue in coloring…I understand why he would have a low Apgar score. Thankfully his hearing seems to be just fine but I guess we will know more next month when we go back for another appointment.


Cain was not a fan of the thing in his ear. I had to keep singing Patty Cake to keep him from crying. I'm sure the techs in the room wished their hearing was bad so they didn't have to hear me singing.

Cain watching bubbles as his hearing was being evaluated.

Sunday, August 23, 2009

Nephrologist Appointment

On Thursday Cain had a follow-up appointment with his Nephrologist. He is still being seen by a Nephrologist due to his BUN and Creatinine levels being elevated during one of his hospital stays. Thankfully we don't have to see this Dr. very often and each time we do it's uneventful. We like uneventful!! They watch him to make sure he has no kidney damage and they also like to watch to make sure he doesn't develop any kidney stones. The Nephrologist said one of the side effects of prolonged use to Lasix (one of the med's Cain takes) can be kidney stones. Thankfully the appointment on Thursday went well and we won't have another follow-up with this Dr. for another 6 months. Somehow I'm supposed to remember to bring a urine sample from Cain with me to this appointment. That's a long time away for me to remember something like that! And if you are like me, you probably wonder how in the world do you get a urine sample from a baby. It's collected from a bag that sticks to him...I just stick the bag on him and get to wait until he goes. We've been to two of these appointments now and Cain did not produce a sample for us either time. That's why they sent me home with a bag this time to collect the sample the day before. :)


Look at how big he is getting! He used to be so look so tiny while laying on this table!!

While we were at the hospital for this appointment I took Cain to see his babysitter Megan. Since Brad and I haven't been on a date in awhile it had been several weeks since Cain last saw Megan. Maybe it's time for a date night soon!




Friday, August 21, 2009

Baby Sal Cook, Jr.

In the days after I found out about Cain’s heart defects I searched the internet for information regarding Hypoplastic Right Heart and Tricuspid Atresia. In doing so, I found a girl in Louisiana named Natalie. Two weeks after we found out about Cain’s heart defects I contacted her. She had just found out that her unborn son had Tricuspid Atresia, ASD, VSD, and pulmonary stenosis. He was due only a few days after Cain. On the first email I ever sent to herI said since we would be going through this together over the next few months maybe we could help each other out with information we find out from dr's, other people, blogs, etc. We were only able to ‘talk’ a few times during those months and once or twice since our babies arrived but it was nice to have someone who knew exactly how I felt.

Monday evening I found out through a website that we are both members of that her precious baby, Sal Jr., had passed over the weekend. I cannot begin to explain how shocked I was to read this. I just sat and sobbed and it’s been all I can think of this week. My heart breaks for Natalie and her family. It is so unfair for this to happen to any parent. I don’t understand it nor will I ever! I’ll never be able to express to Natalie how sorry I am for her loss. Please keep Natalie, Sal Sr. and the rest of their family in your thoughts and prayers during this time. I cannot imagine the pain they must be going through.


Salvadore Michael Cook, Jr.
February 7, 2009 - August 15, 2009

Wednesday, August 19, 2009

Sunday, August 16, 2009

Our week in review

This is going to be a very long post with lots of pictures so bare with me. I am still very behind on the blog so I thought I would just do one very long post of a review from our week to get caught up.

Last weekend we took Cain out on the boat again. Our trips out in the boat sure have changed from the way the used to be. We used to spend the entire day on the river but now we have to start our day on the river very early so we can get home before it gets too hot for Cain. I wouldn't change it for the world though.

Cain in his new swimsuit and hat that we bought during 'tax free' weekend! Does he look tough? :)




Monday night Cain & his Daddy had good quality time together while I went out to eat with my friend Allison. We also went to a place in Franklin called Sips and Strokes and painted pictures. We had alot of fun but I don't think either of us are the next Picasso.


Before
And after

Tuesday is the day that Cain's therapist comes to work with him. The therapist seems very happy about the progress Cain is making. We are continuing to work with him on rolling over. He has rolled from his stomach to his back so now we are working with him on rolling from his back to his stomach. The therapist also taught me exercises to do with Cain to build his core muscles so he will be able to sit on his own.

Wednesday morning I had to take Cain to his pediatrician because he had a rash that continued to get worse. Turns out it was eczema. I am now putting hydrocortisone cream on the rash twice a day and it really seems to be helping.
Thursday my cousin Michael stopped by to visit Cain as he was driving through town for work. I love my family so much and was thrilled to see my cousin even if it was for a very short visit.

Cain & Michael



Friday I worked and cleaned house all day while Brad had to travel to Boston for work. I figured if he could fly to Boston and back in a day the least I could do was have the house cleaned when he returned home that night.


I think Brad's long day of work on Friday wore him out because this is what I caught him doing Saturday morning.





I was folding clothes and thought that Cain and Brad sure were being quite. I finally realized why when I caught them napping together.


I guess Cain needed his nap so he would be ready to play with Liza while Brad and Liza's Daddy went to the Titan's preseason game.


Cain and I went to dinner with Allison and Liza and then went back to their house so the kiddo's could play together. I really think Cain is starting to enjoy Liza's company. I love to see him laughing and smiling at her.



Cain & Liza


Liza helping feed Cain his bottle




Benson & Allison have a TV that is pretty low to the ground. We had an Elmo DVD playing and Cain was enthralled. I kept working with Cain on sitting while he stared at Elmo. And look what happened....




He actually sat up for a brief second. It didn't last long but it was a huge success to me. I was so proud!



Of course I had to give him lots of hugs and kisses for a job well done but he was enjoying Elmo way to much to care about my praises.


Sunday Cain showed his Daddy how well he was doing with sitting up (okay so it's really only still just for a second or two but I think it's cute).


Brad getting Cain ready to practice sitting.



I know it looks like he is sitting with his back against the chair but he's actually in the middle of the chair with no support. Good job Cain!!


Timber....


"I like trying to sit up like a big boy!"



We ended our week with having our friends Tina, Greg, and their little boy Luke over Sunday night for dinner. It was Luke's first time to meet Cain. It was so cute to hear Luke call Cain "Baby Cain".

Cain & Luke
Brad blowing bubbles for Luke



Wow! This really did turn out to be a long post. I feel much better now knowing I'm 'all caught up' on the blog. I hope you enjoyed all the pictures.

Thursday, August 13, 2009

Pool time!

Cain had a chance to dip his cute little toes in a swimming pool last week. I've always loved the water and being in a pool. If possible I would stay at a pool all summer long. I hope Cain enjoys swimming as much as I've always enjoyed it. It's a shame they don't teach swimming lessons at the end of summer. If they did I would probably be signing him up for a mommy and me swim class. I can't wait to take him to swim lessons next summer. I guess I should be working on him mastering rolling over and sitting up before worrying about him learning to swim...shouldn't I!?
Last Thursday afternoon we went with my neighbor Courtney and her twins to Courtney's in-laws pool for an afternoon of relaxing and soaking up the sun.
Cain getting a quick nap in before taking a dip in the pool.
We had all the boys set up in the shade hoping we could get them to nap at the same time so we could relax in the pool for awhile. Of course trying to get three babies to sleep at the same time is nearly impossible.
Cain's first dip in the pool. I think he LIKES it!! What do you think?
He also liked the little fountains in the pool.
Concentrating hard trying to figure all this pool stuff out.
Paxton & Kellen enjoying the water too. Poor Courtney needs to be able to grow another set of arms to take care of these little guys.
Adorable!
Ha! I think Cain may be a little jealous of those cool rafts Paxton & Kellen were floating around in.
Thanks so much Mr. Jerry, Mrs. Lynn, and Shannon for having us over. We had a blast and can't wait to come back!

Tuesday, August 11, 2009

Louisiana visitors

One of the reasons I didn't have much time to blog last week was because I was busy visiting with my best friend who came up to visit. Kristi, her daughter Holli, and her mom drove up from Louisiana last week so Holli and Mrs. Shirley could meet Cain. Kristi is a school teacher and she wanted to make a trip up before she has to start back to school. I was so excited to have them in town. We had a good visit with lots of eating, shopping and visiting. It was so cute to see Holli and Cain together. Their first night here Holli was making noises at Cain and he kept laughing and laughing at her. I wish I had gotten a video of them together.
Holli with her birthday present from 'Aunt' Catherine & 'Uncle' Brad
Holli and Cain slightly bored as we shopped for shoes.
Holli much happier at the Disney store!
All of us together before they had to make the long 8 hour drive back to Louisiana.
Krist took alot more pictures with her camera. I can't wait to see them. I think we got some really cute pictures of Holli & Cain together.

Sunday, August 9, 2009

A very special birthday

Goodness gracious I’m behind on updating my blog. I hope to get caught up over the next few days but I can’t make any promises.

Last weekend we celebrated a birthday of a very special friend. I’ve mentioned Colby, (http://www.hitchcockreport.com/) one of our heart buddies, in other posts. We were invited to his 1st birthday party and we were thrilled to be a part of the celebration.

His party was a beach theme and they had baby pools set up for the kids. It was so cute.


Me, Cain, Colby (the birthday boy) and his mom Becca. It's still crazy to me that I found her through her blog.


The super cute birthday boy. He always has the sweetest smile.


Colby and Cain "talking". I wonder what they were saying to each other. It's no doubt that they have a bond none of us could ever understand.


I thought it was really cute..Colby grabbed Cain's hand and then...


Cain grabbed Colby's finger and didn't want to let go.

I told Brad before we went to the party that I was scared I would end up crying when singing Happy Birthday to Colby. Thankfully I didn't cry but it was certainly a wonderful celebration. Now that I have a 'heart baby' it makes me look at birthdays in a different way. It's a true celebration of life!

Colby has his 2nd surgery (the Glenn operation) scheduled for August 28th. Please keep Colby and his family in your prayers.