Sunday, April 5, 2009

Home from "Vanderbilt Resort"

We are finally home from what Brad likes to call “Vanderbilt Resort" because we keep taking mini vacations there. The plan had been for Cain to be kept Friday night for observation; however, we ended up staying the whole weekend. We are learning that plans can not be made with a “heart baby”.

Cain received a blood transfusion on Friday which they hoped would help raise his O2 saturations. Unfortunately, this did not work. We had a very stressful 36 hours…and I mean STRESSFUL! Cain was very irritable all night and morning. We were lucky if he slept for 20 minutes at a time. Otherwise, he was awake and crying. During this time his saturations ranged in the 50’s & 60’s. They placed Cain on oxygen but this also did not help. Since his oxygen sats were getting so low there had been talks of needing to proceed with Cain’s next surgery.

By midday Saturday it was determined that Cain needed a second blood transfusion. Thankfully, this (along with Lasix) must have been exactly what Cain needed. Cain’s sat’s began to increase and eventually stabilized in an acceptable range.

We were discharged today, but if Cain’s saturations drop again it is a good chance we will end up back at “Vanderbilt Resort” and they will elect to perform Cain’s 2nd surgery much sooner than originally expected. Hopefully, this short stay has bought us a few weeks and will allow Cain to grow a little more and continue to get stronger for his Glenn Operation.


Finally in a room on Friday after his heart cath.


It's hard to tell from this picture but this was a pic of Cain when his coloring was a little blue from his oxygen sats being so low. This was right before he had his 2nd blood transfusion. You can also tell he was retaining water by the puffiness.


Receiving his blood transfusion on Saturday.


Cain finally feeling better after his sats came back up before his oxygen was removed.


Resting peacefully after his oxygen was removed.


Both of my boys resting from a long weekend at the "Vanderbilt Resort"

7 comments:

ashleycottrell said...

So glad u are finally home and his sats have stabilized. The only "resort" part must be the coke floats!!!

Hebert Family said...

I'm so glad to see that Cain is using his "Lay Lay." (I don't know exactly how you would spell it!) I'll have to be sure and let Holli see his picture in the morning holding his blankie. She will LOVE it! Cain is looking like such a big boy. Tell him I hope to be there to see him soon. Give him a kiss from me.
Kristi

3 "A's" and a "B" said...

glad ya'll are home. He looks much better after the fluid came off. Kiss him for us!

Hitchcock Family said...

So glad you guys are home! Cain looks very comfortable being home in daddy's arms! I will continue to pray that his sats stay up and you can postpone the surgery for a few more weeks. I know you and Brad are exhausted, physically and emotionally, but I wanted to tell you that you are both doing an awesome job!!! Cain is lucky to have you guys as his parents!

Katherine said...

I am so sorry that you had such a stressful weekend -- I wish we could have been here to help with Sadie!

Nana said...

I am Amy Carlisle's Mother-in-law and she along with your blog is keeping me posted on beautiful Baby Cain's progress. I will continue to keep all of you in my prayers, and know that the Good Lord will be right there with you every step of the way.
God's Blessings,
Connie Carlisle

Misti said...

So glad you're home!