Wednesday, February 11, 2009

Roller Coaster of Ups and Downs

Wow! That's what I have to say about our day yesterday. The day was a roller coaster of ups and downs. It was obvious that Cain was not feeling his best all day. He stayed cranky most of the day and we had a day filled with his saturation levels going up and down all day long. By now you are probably getting used to hearing us use the word saturation levels. Cain's saturation levels need to stay between 75-85 but they were all over the place yesterday. Sometimes high....sometimes low. He actually had to get placed back on Oxygen to stabilize his levels.

Another unexpected "event" of the day was his feeding tube came out of his small intestine and up to his stomach. Because of this the tube had to be removed and he had to have x-rays done to rule out any aspiration. Thankfully, the results from the x-ray came back just fine. Of course they then had to replace the feeding tube again.

We were able to attempt feeding Cain from a bottle. We tried twice but both times he couldn't keep the milk down.

(1st attempt at bottle feeding)

His originally noted "wet lungs" as seen on his chest x-ray has improved, but is still present.

Other concerns include renal markers (BUN, creatinine) were out of range and therefore his blood pressure medication was stopped temporarily. They have consulted a nephrologist for a kidney ultrasound. This is sometimes expected in cases like Cain's and is just a precautionary measure at this point. We should hear the results from the kidney ultrasound tomorrow.

On a brighter note, we moved out of PCCU and to the 6th floor cardiac ward late last night. They are still following him closely, but we are providing more care for him at this point. We have moved back in to the hospital and are not going home at nights now that we have a bigger room and can stay in Cain's room.

(Cain's new room on the 6th floor. You can see our bed in the background. It will be nice to be home in our bed again after sleeping on this for the next several nights/weeks.)

Today was a much better day. Cain's mood improved and that just makes everyone around him feel better in general. He was able to come back off of oxygen and is breathing room air again. We had a busy day of learning: infant CPR, how to insert a NG (nasogastric) feeding tube, giving him his medicines via this feeding tube, giving him shots of another type of medicine (to prevent clotting), cleaning his incision, mixing breast milk with additives for higher caloric intake, and other important necessary information needed to raise a "cardiac" baby. Needless to say...all 3 of us are pooped.

(night...night...cozy and ready for a good nights sleep)


Anonymous said...

I just want you both to know that my family and I are praying for you and especially for Cain. What a beautiful little boy he is. God can do wonderful things and I have a feeling he has big plans for Cain. Keep the faith and stay strong, but more importantly, support each other. I am so sorry that you are having to go through this. Your story has really touched my heart and I will pray for you daily. Hang in there.
In Christ,
Laura Crutcher (Trey & Andrew)

Anonymous said...

Catherine, Brad and Precious Baby Cain:

I am sending best wishes your way. What a strong fighter Cain is! Amazing... I am so proud of you all.

Lots of love,
Annie Orillac-Thibodeaux

janie clark said...

Cain is adorable!! He is such a strong little boy. take care of yourself.

Meredith said...

We are thinking of you and praying for you everyday. Your story is so encouraging and you are all going to prevail through out this experience. Thinking and praying for you.
Meredith and Greg Zimlich